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Chemo
The week after the
op is the time when everything begins to sink in. Following the biopsy
of the tumour I found out I had combined teratoma and seminoma tumour
stage one and had to decide whether I should have two courses of chemo
to make sure that the cancer’s definitely been killed off. The doc
strongly recommended it and as I’m not a doctor I thought best to do
what he says. Basically if you have chemo you’re far less likely to get
the cancer again and as I only had one real ball left I wasn’t going to
risk it. Life’s here to be enjoyed!!
You start to have
time to think as everything is carrying on around you, friends and
family begin to call and visit. Explaining to everyone was tiring in
itself, not content with explaining it once you have to go through it
all again and again. My nan turns up bless her, cries and then leaves.
Granted she did manage to ask how I was but I should have been the one
asking the question. The poor girl was in pieces, she’s a legend though
so I’ll let her off. As soon as they passed the “oh fuck stage”, which
was different for each person, everything was fine and I worked
something out. If they’d been touched by a serious illness before they
dealt with it a lot quicker. However, for those who haven’t, they just
feel helpless and the best thing you can do is give them time a give
them loads of information about it. This site really helped
CancerBacup.
I had to have a CAT
scan after the op to make sure everything was hunky dory and that there
were no signs of spread in my other lymph nodes (I think they are blood
filter things but could be wrong). You have to drink another litre of
rancid aniseed contrasting agent for the scan…worse than a mucky pint
from your mates. Mum offered to drink a glass so I don’t have to drink
as much, bless her. They did offer to change the taste of it with the
nastiest cheapest most corrosive blackcurrant juice, cheers for that
guys. If they’d told me before I would have rocked up with Ribena or
something. Another gem of information they don’t tell you before is
that drinking this lovely “contrasting agent” plays havoc with the old
routine downstairs. But on a major plus the scan came back clear with no
noticeable tumours. I can’t begin to tell you the relief. Result!
Being a bloke I
clearly went into for my first chemo treatment with every time-wasting
device imaginable; laptop, dvd player, Xbox, assuming that I was going
to be well enough to enjoy them. Oh how wrong could you be!! It’s just
hours and hours of staying there doing bugger all, scared in case you
move too much and the needle in your arm comes out. So there I am for
two nights glaring at my arm trying not to move too much in the vain
attempt, not to dislodge the needle, which I later find out is a piece a
rubber that is held in with one large plaster and several hundreds bits
of tape. Making sure the various valves and bends don’t move at all. I
could have competed in the world judo championships and the thing
wouldn’t have budged a millimetre. Arse I could have slept.
Other annoying chemo
side effects not listed on the medical web sites include;
-
It’s extremely
difficult to play Fifa on the Xbox, I don’t think everyone
appreciates that it’s a two hand game and having one arm
incapacitated doesn’t help.
-
You actually
develop a skill in estimating the amount of piss you produce as you
need to record the volumes to make sure your chemo is fucking your
liver/kidney up.
Back on to the well
documented side effects; sleep depravation/evasion starts to do funny
things to you. On the second day I even laughed at one of the daytime
tele queens, Trisha’s, jokes. That’s when you know it’s getting bad. It
also helps to explain why housewives find it hard to get back to work.
If they have spent the last god knows how many years watching crap like
this. I’m not surprised they can’t get past the interview stage..
The apprehension of
the chemo side effects isn’t a pleasant experience and not something I’d
like to repeat, obviously I’d give it all a miss again but this was
pretty rough. The thing that got me the most; hair loss, acne yarda
yarda - which one are you going to get? Don’t get me wrong it’s not
that I’m having a go at the quack here, but as you don’t know how bad
you’re going to be you really don’t know how well, or bad, you’re
actually doing. Everyone likes to be told that they’re doing well but in
reality everyone just deals with it differently. After coming out from
my first 3 day stint the tiredness kicked in. It was like coming back
from a boozy weekend with the boys; you’re body‘s so tired you can’t
sleep and then when you finally do the sodding alarm clock would wake me
up for yet another anti sickness drugs.
As most of the side
effects take a while to kick in, the first hurdle I had to face was
coming off the steroids. The doc said that I may get a bit of a
depression. I was going to ask him whether it was similar to coming
down after a rather messy weekend but thought best not. I was using the
Tuesday blues for guidance and expecting it to be a pretty horrific
experience, however, it wasn’t. Yes I was a bit grumpy and yes I was
tired, but by no means was it horrific, and to tell you the truth a bit
of an anti climax.
This is the best bit
coming up, you’re going through chemo so they give you anti-sickness
drugs which makes sense. Then the weird bit, you get more anti-sickness
drugs as the first ant-sickness drugs have a side effect of making you
sick!!! What the hell is that all about? Oh and a little pointer these
boys really mess the traffic up downstairs. I’m not one to condone the
drinking of prune juice, however it does seem to do the trick. It’s
nearly as disgusting as the stuff you drink for the CAT scan.
Getting used to the
hospital visits and turning into a pin cushion just came with time. Not
really much to report as I’d grown accustomed to feeling utterly shit
and just wanted to plough on and get the job done. It was good to hear
the tumour markers in my blood reducing week on week.
As everyone sort of
knows, chemo kills off all your quickly growing cells. The idea is that
if we kill everything that’s growing, then the cancer is killed and
hopefully your normal cells are strong enough to pull through when you
finish. This has a couple of implications, you really could do with
keeping the white blood cells, they’re the little fellas that stop you
having a cold. I remember it was a Sunday morning and I was feeling
shocking and my throat was really sore, by lunch it felt like I’d been
swallowing barbed wire and I knew things weren’t ideal especially having
a temperature. We called the hospital and I was in the car quicker than
an Ethiopian with a meal ticket. At the hospital I was on antibiotics
straight away and my blood was taken for testing. The doc came back with
the surprising news that I didn’t have enough white blood cells to get
an actual reading! I guess it meant the chemo was doing the trick but
fuck I felt ill. Got to love antibiotics though; I improved within 6
hours and was back to feeling utterly crap within 12, granted I wasn’t
going to go out and win the Tour de France but at least I was happy
going downstairs to watch TV.
The whole hair
falling out thing didn’t start until week 3, there I am giving my new
ball, which I’m not convinced is the same size, a good old wash in the
shower and the next thing I know he’s as bald as a coot. A bit weird/surreal
but it’s been expected. As soon as this happened I knew it would be days
before all my hair fell out. Not one to take matters into my own hands
out came the clippers and I shaved my head, well I didn’t, I got my
little brother to do it. We had agreed on a grade 4, however, the idiot
fucked up and went straight in with a grade 2!!! What a monkey! I was
pissed at the time but then I thought “what the hell” it makes no odds
and bic’d it. I didn’t realise that I could look so ill. All of my skin
pigment had gone and I looked bloody awful.
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